The APPM holds various educational and training events Our main event is the annual study day for General Paediatricians, Trainees, Children’s and Adults’ Hospice Doctors, Specialists in paediatric and adult palliative medicine and Senior Nurses  working in paediatric palliative care.  On alternative years we run an additional research day prior to the study day. This event is open to APPM members and non-members alike. 

12th APPM Paediatric Palliative Care Research and Study Day 2022  BOOK NOW  Programs now available: Research day and Study day 

 
 
 
Day 1 APPM Research day 
1400-1900 
9th June 2022 
Topics and speakers: 
Prof Ian CK Wong, Professor in Pharmacy Practice, UCL School of Pharmacy / Hong Kong University - Chief Investigator for DIPPER Study 
Ian will discuss the feasibility of conducting RCCTs in our patient population from the point of view of an experienced Pharmacist Lead Researcher, drawing on the findings of the recent NIHR-funded DIPPER study (Feasibility of a randomised clinical trial of transmucosal diamorphine vs oral morphine for breakthrough pain in children and young people with life-limiting conditions) 
 
Prof Christina Liossi, Chair in Paediatric Psychology, University of Southampton & Chair of NIHR Clinical Research Network (CRN) Pain & Palliative Care Clinical Studies Group (CSG) – Chief Investigator for PARAMOUNT (End-of-Life pain management by carers and healthcare professionals in infants, children and young people out of hospital). 
Christina will discuss the recently completed PARAMOUNT study and also the role of the CSG in promoting and supporting research on our sector. 
 
Prof Lorna Fraser, Professor of Epidemiology, Director of Martin House Research Centre, is the Chief Investigator in Developing the UK Collaborative Paediatric Palliative cAre Research (CoPPAR) Network. 
Lorna will talk about the CoPPaR network, as well as other studies on the Martin House portfolio, as examples of the range of research opportunities available. 
 
Prof Richard Harding, Herbert Dunhill Chair and Director of the Cicely Saunders Institute of Palliative Care, and Lucy Coombs, Lead investigator, C-POS study. 
Lucy & Richard will talk about the work to date on the C-POS (Children’s Palliative Care Outcome Scale) study and the ongoing pilot phase. 
 
 
Day 2 APPM Study day 
0900-1700 
10th June 2022 
Topics and speakers: 
(Full programme and speakers to be confirmed) 
 
Launch of the national CYACP document 
Launch of the APPM clinical guidelines 
– seizures, agitation, GI dystonia 
 
Headline sessions: 
Respiratory and cardiac advances – implications for palliative care 
Panel discussions on complex clinical management of palliative patients 
Shifting perceptions in paediatric palliative care 
 
Breakout sessions 
Physiotherapy advances in respiratory and long-term ventilation 
Withdrawal of long-term ventilation – a parent’s perspective 
Spirituality within palliative care 
Role of medical examiner 
 
Focused sessions 
Rapid fire journal club 
Nurses’ forum – to launch APPM nurse membership including regular networking and non-medical prescribing supervision. 

LOCATION:  Hilton Metropole Birmingham Pendigo Way, Marston Green, Birmingham B40 1PP 

 
If you didn’t sign up for the webinar series, you can register for access to recordings of the webinar series below. (£5 plus booking fee) 

 

11th APPM Paediatric Palliative Care Online Study Day 2021  Paediatric Palliative Care Webinar series. (Dates as below – 2:30pm – 4pm) 

Monday 1st November 2021 
Novel therapies in Paediatric Palliative Medicine – CADD pumps, Dexmetomidine and Fentanyl 
Speakers: Bhumik Patel, Specialist Pharmacist in Paediatric Palliative Care, Great Ormond Street Hospital, London | Dr AK Anderson, Consultant in Paediatric Palliative Medicine, Royal Marsden Hospital, Sutton & Shooting Star Children Hospice 
 
Tuesday 9th November 2021 
Complex Enteral Nutrition, GI Dystonia and Palliative Care 
Speakers: Dr Andrew Barclay, Consultant Paediatric Gastroenterologist, Royal Hospital for Children, Glasgow | Dr Jonathan Downie, Consultant in Paediatric Palliative Medicine, Quality Advisor, RCPCH Paediatric Palliative Medicine CSAC, Paediatric Supportive and Palliative Care Team, Royal Hospital for Children, Glasgow | Michelle Brooks, Paediatric Complex Enteral Nutrition Clinical Nurse Specialist/ GI CNS Team Lead, Department of Paediatric Gastroenterology, Hepatology and Nutrition, Royal Hospital for Children, Glasgow 
 
Wednesday 17th November 2021 
’Change in the therapeutic landscape of SMA - from a desert to the rainforests’ 
Speaker: Dr Vasantha Gowda MBBS FRCPCH MSc (University of Oxford), Consultant Paediatric Neurologist, Evelina London Children's Hospital, Honorary Senior Lecturer, Faculty of Life Sciences and Medicine, King’s College, RCPCH Regional Lead, South London Region 
 
Thursday 25th November 2021 
Innovations in Transition 
Speakers: Louise Smith Palliative care nurse specialist Claire House Childrens Hospice | Dr Emma Langford, Medical Director and Palliative Care Consultant St John’s Hospice Wirral. | Sophie Knapp, Transition Nurse, Ty Hafan Children’s Hospice| Tracy Jones, Head of community services and partnership, Ty Hafan Children’s Hospice 
 
 

Virtual Webinars 

 
£5 per session or £15 for series of 4 
(plus booking) 
 
Monday 3rd November 
2.30 - 4pm 
 
Tuesday 9th November 
2.30 - 4pm 
 
Wednesday 17th November 
2.30 - 4pm 
 
Thursday 25th November 
2.30 - 4pm 
 
 
 
 

Who should attend? 

Paediatric palliative care doctors; encompassing paediatricians, hospice doctors, specialist GPs and trainees. 
Senior nurses and nurse consultants as well as specialist allied professionals working at a senior level in paediatric palliative medicine. 
APPM members and nonmembers alike. 
Programme and registration details to follow 

12th APPM Study dan and 2nd APPM research day in 2022 

The next face to face Study day will be held in 9th and 10th June 2022 in Birmingham. 
 
There is a planned research half day on the afternoon of the 9th June followed by a full study day program on the 10th June. 
 
 
 

OTHER OPPORTUNITIES in 2020: 

Time for Change webinars 
Together for Short Lives is proud to present a short series of webinars based on some of the key sessions that were due to take place at our cancelled 2020 conference Time for change? A new vision for children’s palliative care. Sign up for free on the TfSL website here 
 
 
The Martin House Research Centre 2nd Biennial Research Conference 16th April 2021 
 
16th April 2021 
Cancelled event in April 2020 – now online for sessions from 25th September 2020 https://www.rcpch.ac.uk/news-events/rcpch-conference 
European Congress on Paediatric Palliative Care 
8-10 September 2021, Kristiansand, Norway 
 
#PPC2021 
Early bird until 15/05/2021 
25-28th October 2021, ROME 

Past Events 

10th APPM Paediatric Palliative Care Study Day and Research Day 

Please download presentation slides from the event by clicking on the links opposite. 
Presentations coming soon 

The 8th Annual APPM Paediatric Palliative Care Study Day - 24th November 2017 

Topics covered were: 
- Neonatal palliative symptom control 
- Ethical challenges in perinatal palliative care 
- Symptom management (dyspnoea) 
- Perinatal palliative care 
- NICE guidance for end of life care in infants, children and young people 
- A new public health approach to end of life care 
- Paediatric palliative care in court 

The Non-Medical Prescribing in Paediatric Palliative Care Study Day was held at Rainbows Hospice for Children and Young Adults on the 9th June 2016 

The 6th Annual APPM Study Day and Annual General Meeting was held at The Park Crescent Conference Center in central London on the 27th November 2015 

Please download presentation slides from the event by clicking on the links opposite. 

The 5th Annual APPM Study Day and Annual General Meeting was held at The Park Crescent Conference Center in central London on the 28th November 2014 

What past delegates say 
"Fantastic day of interesting talks and the opportunity to meet old friends and make new ones." 
"Clear knowledgeable speakers." 
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